Affecting around 3,600 people in Northern Ireland, Parkinson's is a degenerative neurological condition, for which there currently is no cure. The main symptoms of the condition are tremor, slowness of movement and rigidity. Caroline McEvoy from Parkinson’s UK tells us more.
‘Our mission is to find a cure and improve life for everyone affected by Parkinson's through research, information, support and campaigning.
During Parkinson’s Awareness Week (18-24 April), we will be raising awareness of Parkinson’s and the services the charity provides to anyone who has been diagnosed with Parkinson’s.
We asked people with Parkinson’s to name the top five ways they would ask people to help them.
- Please be patient - It takes me longer to do things. Give me time - I’ll get there.
- Understand communicating can be difficult - If I don’t smile, I’m not being unfriendly - I just can’t move my face.
- Talking isn’t always easy, but if you listen carefully you’ll hear me.
- Please don’t stare or make assumptions - It’s upsetting if you stare or think the worse. If I’m not working it’s because I can’t. There is currently no cure and my symptoms will get worse.
- Please ask if you can help - I can tell you if I need your help. It might take me a while to speak, so please be patient.
- Don’t try and move me if I freeze, I could fall over.
- Take a little time to learn more about Parkinson’s - Parkinson’s affects all kinds of people. Many are raising families, working or volunteering in spite of the obstacles they face. A little understanding would make life a lot easier.
For more information on Parkinson’s UK visit www.parkinsons.org.uk or call the free, confidential helpline on 0808 800 0303.
Often, people with Parkinson’s may have trouble sharing their condition. Are you, or someone you care for affected by Parkinson’s? What would help you talk more about your condition?